TABLE 1

Representative Quotes of 4 Primary Themes

ThemeSupporting Quotations
Technology serves a purpose during FCR“I think it was pretty great because that’s where I was given some information and taking some of my information and putting it into the computer . . . and also giving me feedback from the computer.”
“They should be trying to gather as much information as they can on their patients and they should research . . . because that’s an important part of it, research on their computers, and just do the best to enhance their ability to tend to their patients.”
“. . . it was beneficial because so many specialists are working on this particular case, so when each individual specialist adds a comment or updates their records they’re [the medical team] able to see it when they come in, and they’re [the medical team] able to provide me with accurate information.”
“Everything is in front of them and they can say . . . specifically what’s going on and they can come to . . . their conclusions right there in front of . . . us and . . . we can hear what they’re saying, you know, and . . . I can give them my input . . .”
To view data in real time“I would like to see images of the pictures they took. Show the family what they are seeing.”
“I think that they should share them with the family during rounds like just showing them what they see even though a person may not understand it totally, but to just give me a picture of what you’re looking at would be great! Like, showing me what a normal appendix looks like versus one that’s not normal.”
“. . . today was the first time I saw, when they showed the x-ray I was like in a little bit of a shock because you know I’ve never seen that before . . . so it was amazing. I liked it.”
“The more they can show to the family is good instead of just reading from a thing. I know they don’t have to . . . but they are talking about our child . . . so maybe show us a little bit . . . like a confirmation.”
“At least I could see it as they are . . . talking about it . . . so there won’t be . . . miscommunication.”
“I would like to be able to see assessment and plan . . . sometimes the team fails to communicate effectively. . . We’ve been here and a lot of times I don’t know what’s going on.”
Do not lose the human connection“Sometimes stop after they put everything in and then look at the mother or father and talk to them instead of just typing . . . and leaving . . . they need to stop and make eye contact and talk to the family and the patient.”
“To stay mindful that there’s still a human in the room . . . [with] all the technology and . . . all the latest gadgets . . . you’ll forget that some people just want the human touch . . . remain human at all times.”
“. . . the technology’s helpful but we still have to be dealing with individuals, the patient . . .”
“Sometimes . . . I feel like they’re just talking and looking at the computer. Look at me when you ask a question. It’s more of a robotic-thing. My son is right here. You can look at him and see what’s going on.”
“The impression of a monolithic wall of notebook [computers] might be . . . intimidating.”
Transparency is valued“I’m not sure what they were doing. I would assume taking notes and making it easier to chart stuff.”
“I think they are looking up resources and results. I would hope that’s what they are doing.”
“I don’t think they are on Facebook or anything. I think they are on there doing their job.”
“Say what you’re doing. Be honest. Be upfront. Honest and upfront with us goes a long way.”