TABLE 1

Caregiver and Provider Demographics

CaregiversProviders
Age, y, No. (%)a
 ≤357 (41)7 (32)
 36–456 (35)7 (32)
 >454 (24)8 (36)
Female sex, No. (%)a16 (94)17 (77)
Race and/or ethnicity, No. (%)a
 White14 (82)
 Hispanic2 (12)
Caregiver education, No. (%)a
 High school graduate or GED3 (18)
 Some college or 2-y degree6 (35)
 4-y college degree4 (24)
 >4 y college4 (24)
Type of provider, No. (%)a
 Complex care provider2 (9)
 PCP6 (27)
 ED physician4 (18)
 Inpatient pediatric resident1 (5)
 Subspecialty physician3 (14)
 ED nurse1 (5)
 Inpatient floor nurse1 (5)
 School nurse1 (5)
 Home health nurse1 (5)
 Care coordinator1 (5)
 Case manager1 (5)
Clinic location of provider, No. (%)a
 Main hospital13 (59)
 Regional8 (36)
 Out of state1 (5)
Provider y of practice, No. (%)a
 0–57 (32)
 6–105 (23)
 11–204 (18)
 >206 (27)
Mean provider comfort level caring for CMC (range)b8.0 (3–10)
Provider uses EHR at main practice location, No. (%)a19 (86)
Provider has access to main hospital EHR, No. (%)a18 (82)
Provider comfort level using EHR, mean (range)b8.9 (6–10)
Participant owns a smartphone, No. (%)a16 (94)22 (100)
Participant comfort level with smartphone app usage, mean (range)b8.5 (2–10)8.3 (2–10)
Caregiver endorsed having a care plan for the child, No. (%)a8 (47)
  • GED, general equivalency diploma. —, not applicable.

  • a Sum may not equal 100% due to rounding or participant preferred not to answer survey item.

  • b Response options were on a scale from 1 to 10, with higher ranking indicating a higher comfort level.