TABLE 1

Family Interview Guide

• Did anything surprise you during your baby’s time here at the hospital?
• How did you learn about NAS before your baby’s delivery?
• Did you find any information about opiate treatment in pregnancy or NAS online?
• How much did your family know about the diagnosis of NAS before your baby was born? Did this change during your baby’s hospital stay? How about at your program?
• What would you have liked to know about NAS before the delivery that you did not know?
• What do you think would have been the best way to learn about NAS?
• In what ways did you feel supported by our staff during your baby’s time here in the hospital? Tell me about a specific story of feeling supported.
• At what times, and in what ways, did you not feel supported during your baby’s time in the hospital? Tell me about a specific story of not feeling supported.
• In what ways did you feel like you were a part of your baby’s care team? Tell me about a time when you felt you were treated as a part of the team.
• In what ways did you feel like you were not a part of your baby’s care team? Tell me about a time when you felt you were not treated as a part of the team.
• What could we have done to make this a better experience for you and your family?
• Did staff members ever say something in front of your family that they were not supposed to?
• Was your baby cared for on different units? What was it like being transferred from 1 unit to another?
• How was the clinical care different between the units?
• How were you involved in your baby’s scoring on the different units?
• Tell me about how the different environments of these units might affect how you could provide comfort measures for your baby’s NAS.
• What were you told about breastfeeding? Did you receive any conflicting information?
• Tell me something that you think would be helpful for our staff to know about caring for a baby and family like yours.
• Tell me something that you think would be helpful for other families to know during the pregnancy or hospital stay.
• Is there something that a staff member did or said that you will never forget? If yes, tell me what this was.