TABLE 1

Parent-Reported Miscommunications by Patient and Parent Characteristics

CharacteristicsOverall, n = 406 (%)≥1 Parent-Reported Miscommunication, n = 62 (%)No Parent-Reported Miscommunication, n = 344 (%)P
Patient
 Age, mean (SD), y6.1 (5.7)5.6 (5.9)6.2 (5.7).42
 Sex
  Female203 (50.0)32 (51.6)171 (49.7).78
  Male203 (50.0)30 (48.4)173 (50.3)
 Race
  White214 (52.7)34 (54.8)180 (52.3).91
  African American55 (13.5)8 (12.9)47 (13.7)
  Asian6 (1.5)1 (1.6)5 (1.5)
  Other82 (20.2)10 (16.1)72 (20.9)
  Multiracial12 (3.0)2 (3.2)10 (2.9)
  Missing or unknown37 (9.1)7 (11.3)30 (8.7)
 Ethnicity
  Hispanic62 (15.3)6 (9.7)56 (16.3).20
  Non-Hispanic282 (69.5)49 (79.0)233 (67.7)
  Missing or unknown62 (15.3)7 (11.3)55 (16.0)
 CCCa presence
  No301 (74.1)42 (67.7)259 (75.3).21
  Yes105 (25.9)20 (32.3)85 (24.7)
 Length of stay, median (IQR), d2.6 (1.9–4.1)4.0 (2.2–7.0)2.3 (1.9–3.9)<.001c
 Insurance
  Nonpublic249 (61.8)46 (74.2)203 (59.5).03c
  Public154 (38.2)16 (25.8)138 (40.5)
Parent
 Age, mean (SD), yb36.8 (8.9)35.1 (9.2)37.0 (8.9).17
 Sex
  Female275 (67.7)38 (61.3)237 (68.9).26
  Male62 (15.3)9 (14.5)53 (15.4)
  Missing69 (17.0)15 (24.2)54 (15.7)
 Relationship to patient
  Parent328 (80.8)45 (72.6)283 (82.3).15
  Other12 (3.0)2 (3.2)10 (2.9)
  Missing66 (16.3)15 (24.2)51 (14.8)
 Race
  White229 (56.4)35 (56.5)194 (56.4).37
  African American34 (8.4)5 (8.1)29 (8.4)
  Asian14 (3.4)2 (3.2)12 (3.5)
  Other34 (8.4)3 (4.8)31 (9.0)
  Multiracial14 (3.4)0 (0)14 (4.1)
  Missing or unknown81 (20.0)17 (27.4)64 (18.6)
 Ethnicity
  Hispanic64 (15.8)5 (8.1)59 (17.2).04c
  Non-Hispanic270 (66.5)40 (64.5)230 (66.9)
  Missing or unknown72 (17.7)17 (27.4)55 (16.0)
 Parent primary language
  English339 (83.5)54 (87.1)285 (82.8).41
  Other67 (16.5)8 (12.9)59 (17.2)
 Education
  High school or less68 (16.7)6 (9.7)62 (18.0).14
  Any college266 (65.5)41 (66.1)225 (65.4)
  Missing72 (17.7)15 (24.2)57 (16.6)
 Annual household income
  ≤$29 99987 (21.4)6 (9.7)81 (23.5).001c
  $30 000–$49 99937 (9.1)5 (8.1)32 (9.3)
  $50 000–$74 99927 (6.7)12 (19.4)15 (4.4)
  $75 000–$99 99928 (6.9)3 (4.8)25 (7.3)
  ≥$100 000120 (29.6)18 (29.0)102 (29.7)
  Missing107 (26.4)18 (29.0)89 (25.9)
  • a The CCC system uses International Classification of Diseases, Ninth Revision, Clinical Modification codes to categorize medically complex children. It uses these codes to identify “any medical condition that can be reasonably expected to last at least 12 months (unless death intervenes) and to involve either several different organ systems or 1 organ system severely enough to require specialty pediatric care and probably some period of hospitalization in a tertiary care center.”27

  • b 18.7% of respondents did not report parent age.

  • c Values are statistically significant.