TABLE 2

Examples of Parent-Reported Miscommunications

ThemeParent Narrative Comment
Delay in providing key information“Sometimes things happen slower than they should.”
Conflicting information“Different info from different people.”
“Was told I no longer needed to [keep] wet diapers but later told I should keep for weighing (minor but inconsistent).”
The physician team did not speak directly to you“[Doctor] never came to do exam.”
“I didn’t know who my nighttime doctors were.”
The way communication happened upset you“[Felt] the doctors didn’t value any input on my child’s progress/care.”
“Nurses occasionally were not informed of changes in plans.”
Other“Treatment was discussed with attending during the day. Change in treatment by the attending not communicated (later by nurse).”
  • Representative quotations about miscommunications from parents taken from optional parent narrative responses.