TABLE 1

Parent and Child Characteristics

CharacteristicResult (N = 120)
Parent
 Women, n (%)99 (83)
 Parent age, y, median (IQR)32 (27–39)
 Highest level of education, n (%)
  Less than high school12 (10)
  High school28 (24)
  Some college36 (31)
  College degree or more42 (35)
 Race and/or ethnicity, n (%)
  White85 (71)
  Hispanic23 (19)
  Other22 (18)
 Spanish speaking, n (%)7 (6)
Child
 Girls, n (%)52 (43)
 Age, y, median (IQR)3 (0.6–9)
 Ethnicity, n (%)
  White79 (66)
  Hispanic22 (19)
  Other18 (15)
 POPC,a n (%)
  1 or 294 (78)
  ≥325 (21)
 First PICU admission, n (%)88 (73)
 Public (Medicaid) insurance, n (%)63 (53)
 Hospital LOS, d, median (IQR)2 (1–3.5)
 PICU LOS, d, median (IQR)1 (1–3)
 Type of medical condition,b n (%)
  Acute39 (33)
  Noncomplex chronic16 (13)
  Complex chronic64 (54)
 Admitted after surgical procedure, n (%)39 (33)
 Intubated at time of survey, n (%)29 (24)
 Primary organ system involved, n (%)
  Respiratory41 (35)
  Neurologic25 (21)
  Cardiovascular23 (19)
  Endocrine7 (6)
  Other organ systemc6 (5)
 PSS-10 score, median (IQR)14 (5–23)
 PSS-PICU score, median (IQR)2.2 (1.4–3)
  • a POPC is a method of assessing the general functional status of a child via a qualitative assessment of performance based on the Glasgow Outcome Scale.18

  • b As defined by Feudtner.20

  • c Other organ systems include the dermatologic; gastrointestinal; genetic; gynecologic; hematologic; immunologic; infectious; injury, poisoning, and/or adverse event; metabolic; oncologic; ophthalmologic; orthopedic; psychiatric; renal and/or genitourinary; and rheumatologic system.