TABLE 1

Characteristics Among Patients Included in Study Population (N = 180)

Patient Characteristicsn (%)
Girls70 (39)
Age at diagnosis
 ≤30 d97 (54)
 31 d to 1 y29 (16)
 2–6 y11 (6)
 7–12 y14 (8)
 13–18 y19 (11)
 >18 y10 (6)
Racea
 White116 (73)
 African American29 (18)
 Other14 (9)
Private health insurance70 (39)
County of residence
 Hospital’s county84 (47)
 Contiguous county33 (18)
 Other63 (35)
Type of palliative care–qualifying diagnosis
 Neuromuscular12 (7)
 Cardiovascular37 (21)
 Pulmonary20 (11)
 Malignancy23 (13)
 Genetic28 (16)
 Renal4 (2)
 Gastrointestinal4 (2)
 Hematologic and/or immunologic1 (1)
 Metabolic2 (1)
 Acute event49 (27)
Diagnosis met criterion for automatic palliative referral80 (44)
Location of death
 NICU63 (35)
 PICU52 (29)
 CTICU36 (20)
 Hospital floor28 (16)
 Other location1 (1)
  • CTICU, cardiothoracic ICU.

  • a Missing information for 21 patients.