Table 3

QoL of Children in MFC (CHQ-PF28 Questionnaire)

CHQ-PF28 QuestionnaireaNormative Values
DomainMFC Cohort, n = 4, Median (Range)Age 5–18 yb, n = 391, Median (Range)
Physical functioning0 (0–21.5)100 (0–100)
Role or social limitations: emotional or behavioral16.5 (0–100)100 (0–100)
Role or social limitations: physical24.8 (0–66)100 (0–100)
Bodily pain or discomfort40 (0–100)80 (0–100)
Behavior87.2 (40–95)71.3 (0–100)
Mental health75 (57–100)83.3 (16–100)
Self-esteem83.5 (50–100)83.3 (0–100)
General health perceptions49.2 (32–60)75 (0–100)
Change in health over previous yearc4.5 (3–5)
  • —, not applicable.

  • a The domain standardized scores range from 0 to 100, with a lower score being more impaired in that domain.

  • b CHQ-PF28 normative values for the general US population age 5 to 18 y was provided by HealthActCHQ, Inc.22

  • C Change in health over the last 12 mo is scored 1 to 5, with 1 representing worsening health in the past year and 5 representing improvement in health in the past year. If a child was not in MFC for 12 mo, then responses reflect change in health since entering MFC placement.